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Table 3 Consent and completion rates for patients in Uppsala Psychiatric Patient Samples (UPP)

From: No regrets: Young adult patients in psychiatry report positive reactions to biobank participation

 

Consent n (%)

Completed n (%a)

ASKED TO PARTICIPATE IN UPP

1119 (100)

 

Declined to participate

656 (58.6)

PARTICIPANTS IN UPP

463 (41.4)

 Included in UPP

463 (100)

n/a

 Access to medical records

457 (98.5)

457 (100)

 Questionnaires and health examination

460 (99.1)

460 (100)

 Blood test, hormone

445 (95.9)

435 (97.6)

 Blood test, genetics

441 (95.0)

435 (98.6)

 Saliva

420 (90.5)

202 (47.9)

 Feces (n = 299)b

n/a

111 (37)

 Feces (n = 164)b

98 (59.8)b

47(48)

 Adrenal Function

387 (83.4)

ni

 Lumbar puncture (n = 299)

134 (44.8)b

ni

 Lumbar puncture (n = 164)b

118 (72)b

ni

 Collection of information in the national health and population registers (n = 164)

156 (94)b

ni

 To be contacted in the future

442 (95.2)

ni

  1. ni Not been implemented. aPercentage of study participants who consented and completed test presented. bNumber of eligible participants is lower due to a modified consent form after the first 298 study participants