Table 3 Theme one – patients considering the needs, risks, preferences and impact of research participation for community and themselves

Feeling comfortable

In the physical environment/setting where research is occurring

Perceiving a need

For research addressing community priorities

Having a connection

Between staff and patients, including shared cultural background (contrasting perspectives explored in Table 4)

Sometimes connections can:

– Be inappropriate if interviewing family members

– Require additional time to complete research interviews

Declining to participate

Because of concerns about research or speaking about SEWB problems

Too busy, too sick or had other priorities