Table 1 Demographic and situational characteristics of participants
|  | REACT n = 399 | RD n = 401 | Overall n = 800 |
|---|---|---|---|
Age (years) | |||
  < 30 | 39 (9.77) | 36 (8.98) | 75 (9.38) |
 30–39 | 50 (12.53) | 73 (18.20) | 123 (15.38) |
 40–49 | 95 (23.81) | 104 (25.94) | 199 (24.88) |
 50–59 | 111 (27.82) | 112 (27.93) | 223 (27.88) |
 60–69 | 88 (22.06) | 61 (15.21) | 149 (18.63) |
  ≥ 70 | 16 (4.01) | 15 (3.74) | 31 (3.88) |
 Mean (SD) | 49.4 (13.3) | 47.9 (12.7) | 48.6 (13.00) |
 Range (min–max) | 16–84 | 18–86 | 16–86 |
Gender | |||
 Male | 82 (20.55) | 69 (17.21) | 151 (18.88) |
 Female | 317 (79.45) | 331 (82.54) | 648 (81.00) |
 Missing | 0 (0.00) | 1 (0.25) | 1 (0.13) |
How many people do you support? | |||
 1 | 296 (74.19) | 295 (73.57) | 591 (73.88) |
 2 | 68 (17.04) | 72 (17.96) | 140 (17.50) |
 3 | 20 (5.01) | 21 (5.24) | 41 (5.13) |
  ≥ 4 | 15 (3.76) | 13 (3.24) | 28 (3.50) |
Relationship to service user | |||
 Mother | 187 | 200 | 387 |
 Father | 17 | 10 | 27 |
 Partner | 149 | 143 | 292 |
 Daughter | 56 | 62 | 118 |
 Son | 6 | 1 | 7 |
 Sibling | 41 | 38 | 79 |
 Friend | 31 | 26 | 57 |
 Grandparent | 8 | 2 | 10 |
 Wider family member | 17 | 17 | 34 |
 Other | 10 | 12 | 22 |
 Undefined | 38 | 52 | 90 |
Ethnicity | |||
 White British | 361 (90.48) | 366 (91.27) | 727 (90.88) |
 White Irish | 5 (1.25) | 6 (1.50) | 11 (1.38) |
 Any other white background | 15 (3.76) | 13 (3.24) | 28 (3.50) |
 Mixed | 6 (1.50) | 6 (1.50) | 12 (1.50) |
 Asian or Asian British | 11 (2.76) | 3 (0.75) | 14 (1.75) |
 Other Ethnic group | 1 (0.25) | 5 (1.25) | 6 (0.75) |
 Rather not say | 0 (0.00) | 2 (0.50) | 2 (0.25) |
Marital status | |||
 Single | 88 (22.06) | 77 (19.20) | 165 (20.63) |
 Married | 219 (54.89) | 239 (59.60) | 458 (57.25) |
 Civil partnership | 14 (3.51) | 13 (3.24) | 27 (3.38) |
 Separated | 8 (2.01) | 15 (3.74) | 23 (2.88) |
 Divorced | 47 (11.78) | 40 (9.98) | 87 (10.88) |
 Widowed | 10 (2.51) | 8 (2.00) | 18 (2.25) |
 Rather not say | 13 (3.26) | 9 (2.24) | 22 (2.75) |
Living arrangements | |||
 Spouse or partner | 275 (68.92) | 289 (72.07) | 564 (70.50) |
 Living alone | 82 (20.55) | 80 (19.95) | 162 (20.25) |
 Parent(s) | 17 (4.26) | 11 (2.74) | 28 (3.50) |
 Other | 20 (5.01) | 17 (4.24) | 37 (4.63 |
 Rather not say | 5 (1.25) | 4 (1.00) | 9 (1.13) |
Dependents | |||
 None | 168 (41.90) | 175 (43.86) | 343 (42.88) |
 1 | 99 (24.69) | 117 (29.32) | 216 (27.00) |
 2 | 91 (22.69) | 57 (14.29) | 148 (18.50) |
 3 | 30 (7.48) | 28 (7.02) | 58 (7.25) |
  ≥ 4 | 13 (3.26) | 22 (5.49) | 35 (3.48) |
Highest education level | |||
 School level | 65 (16.29) | 73 (18.20) | 138 (17.25) |
 Further education (college) | 108 (27.07) | 117 (29.18) | 225 (28.13) |
 Higher (University) | 226 (56.64) | 211 (52.62) | 437 (54.63) |
Employment status | |||
 Employed full-time (35 h + a week) | 150 (37.59) | 151 (37.66) | 301 (37.63) |
 Employed part-time | 92 (23.06) | 96 (23.94) | 188 (23.50) |
 Unable to work due to caring responsibilities | 33 (8.27) | 33 (8.23) | 66 (8.25) |
 Unable to work due to ill health/disability | 30 (7.52) | 20 (4.99) | 50 (6.25) |
 Unemployed | 10 (2.51) | 8 (2.00) | 18 (2.25) |
 Student | 7 (1.75) | 8 (2.00) | 15 (1.88) |
 Retired | 53 (13.28) | 58 (14.46) | 111 (13.88) |
 Voluntary work | 12 (3.01) | 11 (2.74) | 23 (2.88) |
 Housewife/house husband | 12 (3.01) | 16 (3.99) | 28 (3.50) |
Home internet access | |||
 Yes | 395 (99.00) | 400 (99.75) | 795 (99.38) |
 No | 1 (0.25) | 0 (0.00) | 1 (0.13) |
 Intermittent or poor quality | 3 (0.75) | 1 (0.25) | 4 (0.50) |
Paid work affected by caring role | |||
 No, I didn’t have paid work before | 120 (30.08) | 125 (31.17) | 245 (30.63) |
 No, I still perform the same amount of paid work | 198 (49.62) | 195 (48.63) | 393 (49.13) |
 Yes, I stopped work completely | 40 (10.03) | 33 (8.23) | 73 (9.13) |
 Yes, I reduced my working hours | 41 (10.28) | 48 (11.97) | 89 (11.13) |
 Mean (SD) | 13.5 (9.3) | 11.4 (6.6) | 12.4 (8.0) |
 Min–max | 2–48 | 1–30 | 1–48 |