Table 3 Participants’ perceived motivational factors for the completion of an ARD
Motivational factors | Illustrative quote(s) |
|---|---|
Discuss with | |
No one | When I have to complete such a thing, I can do that by myself. I don’t need anyone else. DBM5 |
Clinician/ researcher | I’d say the treating physician. DBM2 |
They do not have to be physicians but I think that they should have a bit of knowledge, there should be experience. God, that is ... I don’t know. A research institute could actually do this. Why not? DBW6 | |
Family | I would have to talk about it with my partner that is important and I would talk to my children about it. DBW2 |
Trust | There must already be a trusting relationship so that I can assume he is acting with good intentions. DBW4 |
Timing/ time | A doctor who has more than two minutes, who listens and explains what he advises, and does not always look at the clock to check how much time has been wasted. DBM7 |
There should be some time in between because you have to come to terms with the idea [of the diagnosis]. DBM2 | |
Pre-formulated template | I think it’s better when you have such a template because, I think I would forget so much or will not think of so many things that a template could point out what is important. DBW1 |
Role representative | My partner should have the last word for when I am suffering from dementia. So that I can hand over responsibility because I can’t bear it anymore. DBM5 |