Table 4 Participants’ expressed concerns and remaining questions regarding ARDs
Reservations and worries | Illustrative quote(s) |
|---|---|
No reservations | No, I don’t think I have any concerns. DBM2 |
Anticipation | When I have dementia, then I won’t remember what I have decided earlier. DBM5 |
In ten years, then it will be outdated again and then it is something completely different again so it is not feasible. So I would not want to commit in advance. DBW7 | |
Withdrawal | Often when something like this starts you can’t stop it anymore, it’s not like the engine of a car. DBW5 |
Abuse | That the data is not abused, but that one really only uses my data for dementia research. I worry about the pharmaceutical industry. Patients should definitely not be abused by any company, now they can be used as experimental objects. DBW6 |
Condition for appropriate counselling | The question is whether for this … you will have to train people to sit down and discuss it. DBW12 |