Table 2 Assessment schedule for PRIME Cohorts
Data collected by questionnaire | Depression | Alcohol use disorders | Psychosis | Epilepsy | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Months of follow-up* | 0 | 3/6 | 12 | 0 | 3 | 12 | 0 | 6 | 12 | 0 | 6 | 12 |
DEMOGRAPHICS CHARACTERISTICS | ✓ | ✓ | ✓ | ✓ | ||||||||
CLINICAL MEASURES | ||||||||||||
WHO Disability Assessment Schedule (WHODAS 2.0) [34] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Patient Health Questionnaire (PHQ-9) [26] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Alcohol Use Disorder Identification Test (AUDIT) [27] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
Short Inventory of Problems – Recent (SIP 2-R] [75, 76] | ✓ | ✓ | ✓ | |||||||||
Suicidality (Composite International Diagnostic Interview - suicidality module) [77] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Epilepsy severity (developed by PRIME) | ✓ | ✓ | ✓ | |||||||||
Brief Psychiatric Rating Scale (BPRS-E) [30] | ✓ | ✓ | ✓ | |||||||||
Positive and Negative Syndrome Scale (PANSS) [78] | ✓ | ✓ | ✓ | |||||||||
HEALTH SERVICE USE | ||||||||||||
Group/community interventions (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Mental health services received (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
Health Service use and costs (adapted from the Client Service Receipt Inventory) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
MEDICATION ADHERENCE | ||||||||||||
Morisky, Green and Levine Adherence Scale [79] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Medication adherence (adapted from Care for People with Schizophrenia in India) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
SOCIAL AND ECONOMIC MEASURES | ||||||||||||
Economic activity (adapted from WHODAS 2.0, added items by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Severe Adverse Events (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
Oslo 3-item Social Support Scale [80] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Caregiver work burden - WHO Family Interview Schedule (Impact) [81] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
Caregiver economic activity (adapted from WHODAS 2.0, items added by PRME) | ✓ | ✓ | ✓ | |||||||||
STIGMA AND DISCRIMINATION | ||||||||||||
Discrimination and Stigma Scale [82] | ✓ | ✓ | ✓ | ✓ | ||||||||
Caregiver stigma & discrimination - WHO Family Interview Schedule (Stigma) [81] | ✓ | ✓ | ||||||||||
Human rights abuse by caregiver (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||