Table 4 Top five consensus statements per profile (Round 2 & 3)
Rank | Item text | Overall | Scientists | Professional caregivers | Primary caregivers | |||||
|---|---|---|---|---|---|---|---|---|---|---|
Consensus in round | S/N-Sa | Level of agreement (%) | Mean (SD) | Modeb | Range | Level of agreement (%) | Level of agreement (%) | Level of agreement (%) | ||
Profile: Persons with mild intellectual disability | ||||||||||
 1 | Attention to their resilience is important. | 3 | S | 97.8 | 4.18 (.45) | 4 | 2 | 90.9 | 100 | 100 |
 2 | Treatment and support must focus on the possibilities of the person. | 2 | N-S | 96.3 | 4.05 (.58) | 5 | 2 | 92.3 | 95.2 | 100 |
 3 | The intensity of treatment and support can easily be adjusted (a lot if necessary, a little if things are going well). | 2 | N-S | 94.4 | 4.44 (.60) | 5 | 2 | 92.3 | 90.5 | 100 |
 4 | Support from own network (family, friends, acquaintances) is important. | 2 | N-S | 94.4 | 4.24 (.55) | 4 | 2 | 84.7 | 95.2 | 100 |
 5 | Support with regard to entering into and maintaining social contacts is necessary. | 3 | S | 93.2 | 4.14 (.60) | 4 | 3 | 90.9 | 89.5 | 100 |
Profile: Males with problem behaviour | ||||||||||
 1 | A relapse in addiction must be prevented. | 3 | S | 97.7 | 4.23 (.48) | 4 | 2 | 100 | 94.7 | 100 |
 2 | The treatment and support must focus on the possibilities of the person. | 2 | N-S | 96.3 | 4.56 (.57) | 5 | 2 | 92.3 | 95.2 | 100 |
 3 | Appropriate research on additional problems besides the intellectual disability is required. | 2 | S | 96.2 | 4.44 (.57) | 4 | 2 | 100 | 90.4 | 100 |
 4 | Coordination of the various sectors in healthcare is necessary. | 2 | N-S | 94.4 | 4.43 (.60) | 5 | 2 | 100 | 95.2 | 89.5 |
 5 | Support with regard to finding and keeping daytime activities/ work is very important. | 3 | S | 93.2 | 4.30 (.59) | 4 | 2 | 100 | 89.5 | 92.9 |
Profile: Persons with material hardship and abuse by parents | ||||||||||
 1 | Knowledge and overview of all aspects related to the person (e.g. intellectual ability, social skills, participation in society) are necessary to achieve an optimal treatment and support program. | 2 | S | 98.2 | 4.50 (.54) | 5 | 2 | 100 | 100 | 94.7 |
 2 | Attention to the qualities of the individual is required. | 2 | N-S | 98.1 | 4.48 (.54) | 5 | 2 | 92.3 | 100 | 100 |
 3 | Tenacity in seeking and maintaining contact is necessary. | 2 | N-S | 96.3 | 4.41 (.57) | 4 | 2 | 92.3 | 100 | 94.7 |
 4 | Early support is needed to prevent the escalation of problems. | 2 | N-S | 96.2 | 4.44 (.57) | 4 | 2 | 92.3 | 100 | 94.8 |
 5 | Guidance on finances or debts is necessary. | 3 | S | 95.4 | 4.32 (.64) | 4 | 3 | 100 | 89.5 | 100 |
Profile: Male youngsters with problem behaviour and family problems | ||||||||||
 1 | A safety net with people in case of relapse is important | 2 | S | 98.1 | 4.53 (.54) | 5 | 2 | 92.3 | 100 | 100 |
 2 | Guidance in independent living is indispensable. | 3 | S | 97.8 | 4.25 (.49) | 4 | 2 | 100 | 94.7 | 100 |
 3 | Cooperation between the different healthcare providers who are involved with the person is necessary. | 2 | N-S | 96.2 | 4.54 (.58) | 5 | 2 | 100 | 95.2 | 89.5 |
 4 | Attention to a safe (home) environment is required. | 2 | S | 96.2 | 4.49 (.58) | 5 | 2 | 92.3 | 95.2 | 100 |
 5 | A perspective must be offered for the future. | 3 | S | 95.5 | 4.30 (.63) | 4 | 3 | 100 | 94.7 | 92.9 |
Profile: Persons with addictive problems | ||||||||||
 1 | The intellectual disability must be taken into account during treatment and support. | 2 | S | 98.1 | 4.58 (.54) | 5 | 2 | 92.3 | 100 | 100 |
 2 | Endurance and tenacity in treatment and support are required. | 2 | N-S | 96.3 | 4.30 (.54) | 4 | 2 | 92.3 | 95.2 | 100 |
 3 | Cooperation between the different healthcare organisations is very important. | 2 | N-S | 96.2 | 4.47 (.64) | 5 | 3 | 100 | 100 | 89.9 |
 4 | A positive approach is necessary. | 2 | N-S | 94.4 | 4.42 (.60) | 4 | 2 | 92.3 | 100 | 89.5 |
 5 | Long-term support must be provided. | 2 | N-S | 94.4 | 4.40 (.66) | 4 | 3 | 92.4 | 95.2 | 94.7 |