Construct | Measure | Source | Time-point | |||
---|---|---|---|---|---|---|
 |  |  | 1 | 2 | 3 | 4 |
Outcome Measures | Â | Â | Â | Â | Â | |
Parent Distress | Posttraumatic Stress Checklist-Specific Version (PCL-S) [40] | P | Â | * | * | * |
Post traumatic growth | Post Traumatic Growth Inventory – Short form [41] | P |  |  |  | * |
Child psychopathology | The Brief Infant Toddler Social Emotional Assessment [42], or Strengths and Difficulties Questionnaire (SDQ) [43] | P | Â | * | * | * |
 | Strengths and Difficulties Questionnaire (SDQ) [43] | C |  | * | * | * |
 | Parent Report of Posttraumatic Stress Symptoms [44] | P | * | * | * | * |
 | Child Report of Posttraumatic Stress Symptoms [44] | C |  | * | * | * |
Child wellbeing | PEDS Quality of Life (6 years+) [45] or TNO-AZL Preschool Children Quality of Life (1–5 years) [46] | P |  | * | * | * |
 | PEDS Quality of Life [45] | C |  | * | * | * |
Illness Related Factors | Â | Â | Â | Â | Â | |
Illness variables | Severity of Illness Scale [47] | MD | * | Â | Â | Â |
Demographic Factors | Â | Â | Â | Â | Â | |
Demographics | General questionnaire of parent demographic information (eg. age, years of education, ethnicity) | P | * | Â | Â | Â |
Health Economy | General questionnaire of health economy factors (eg. level of income, services used in the hospital and in the community) | P | * | * | * | * |
Psychosocial Factors | ||||||
Psychosocial factors | Psychosocial Assessment Tool (PAT 2.0) [48] (assessing psychosocial risk factors such as family structure, family beliefs, access to services and transport) | P | * | * | * | * |
 | Psychosocial Assessment Tool (PAT-S) [25] | SW | * | * |  |  |
Parent distress/ wellbeing | Acute Stress Disorder Scale (ASDS) [49] | P | * | Â | Â | Â |
 | Depression Anxiety Stress Scale Short Form (DASS-21) [50] | P | * | * | * | * |
 | Assessment of QoL (AQOL) [51] | P | * | * | * | * |
 | State Trait Anxiety Scale [52] | P | * |  |  |  |
Family Functioning | Family Environment Scales [53] | P | * | Â | Â | Â |
Moderators | Â | Â | Â | Â | Â | |
Experience of Illness | Parent Experience of Child Illness (PECI) [54] | P | Â | * | * | * |
 | Family Management Measure [55] | P |  | * | * | * |
 | Benefit Burden Scale - Children [56] | C |  | * | * | * |