Table 2 Assessment schedule for the PRIME cohorts
Data collected by questionnaire | Depression | Alcohol use disorders | Psychosis | Epilepsy | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Months of follow-upa | 0 | 3/6 | 12 | 0 | 3 | 12 | 0 | 6 | 12 | 0 | 6 | 12 |
Demographics characteristics | ✓ | ✓ | ✓ | ✓ | ||||||||
Clinical Measures | ||||||||||||
 WHO Disability Assessment Schedule (WHODAS 2.0) [34] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Patient Health Questionnaire (PHQ-9) [26] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Alcohol Use Disorder Identification Test (AUDIT) [27] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
 Short Inventory of Problems – Recent (SIP 2-R] [75, 76] | ✓ | ✓ | ✓ | |||||||||
 Suicidality (Composite International Diagnostic Interview - suicidality module) [77] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Epilepsy severity (developed by PRIME) | ✓ | ✓ | ✓ | |||||||||
 Brief Psychiatric Rating Scale (BPRS-E) [30] | ✓ | ✓ | ✓ | |||||||||
 Positive and Negative Syndrome Scale (PANSS) [78] | ✓ | ✓ | ✓ | |||||||||
Health Service Use | ||||||||||||
 Group/community interventions (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Mental health services received (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
 Health Service use and costs (adapted from the Client Service Receipt Inventory) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Medication adherence | ||||||||||||
 Morisky Medication Adherence Scale (4-item) [79] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Medication adherence (adapted from Care for People with Schizophrenia in India) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
Social and economic measures | ||||||||||||
 Economic activity (adapted from WHODAS 2.0, added items by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Severe Adverse Events (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
 Oslo 3-item Social Support Scale [80] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ |
 Caregiver work burden - WHO Family Interview Schedule (Impact) [81] | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
 Caregiver economic activity (adapted from WHODAS 2.0, items added by PRME) | ✓ | ✓ | ✓ | |||||||||
Stigma and discrimination | ||||||||||||
 Discrimination and Stigma Scale [82] | ✓ | ✓ | ✓ | ✓ | ||||||||
 Caregiver stigma & discrimination - WHO Family Interview Schedule (Stigma) [81] | ✓ | ✓ | ||||||||||
 Human rights abuse by caregiver (developed by PRIME) | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||