Table 1 Diagnostic and Service Outcomes (primary outcomes)
Outcome | Measures | Response | Description |
|---|---|---|---|
Expedited Evaluation | Achievement of Diagnostic Resolution | Yes/No | Percent children who complete diagnostic assessment within 12-month follow-up |
Timing of Diagnostic Resolution | Timely | Timely- Diagnostic interval ≤ 120 days | |
Delayed | Delayed- Diagnostic interval > 120 but ≤ 180 days | ||
Unresolved | Unresolved - No resolution by 12-months | ||
Diagnostic Interval | Number of Days | Beginning the day of the positive confirmatory screen and ending the day when family receives determination (yes/no) of ASD diagnosis | |
Referral to Treatment | Time to receipt of EI services | Number of Days | Days from failed M-CHAT to receipt of services |
Time to receipt of ASD services | Number of Days | Days from Date of diagnosis to ASD services | |
Engagement in Treatment | Hours of services | Number of Hours | Hours ASD specialty services |
Adequacy of Services | Yes/No | Based on guideline of 25 h/ week | |
Absenteeism | Number of absences | Number of family-initiated “no show” and cancellations divided by the number of scheduled appointments in 6 month period following diagnosis | |
Determination of ASD Diagnosis | ASD diagnosis | Yes/No | Based on ADOS evaluation by Board Certified DBP |
Satisfaction with ASD-Services | Client Satisfaction Questionnaire [50] | Categorical and numerical | Previously validated measure of satisfaction with services |
Satisfaction with Hospital Care Questionnaire [50] | Categorical and numerical | Previously validated measure of satisfaction with services | |
Satisfaction with Navigator | Patient Satisfaction with Interpersonal Relationship with Navigator [51] | Categorical and numerical | Newly validated 9-item scale to assess satisfaction with the interpersonal relationship with navigators |