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Table 3 Description of Measures Collected

From: Promoting early autism detection and intervention in underserved communities: study protocol for a pragmatic trial using a stepped-wedge design

Measure

Brief Description

Completed by PCP Practices

ā€ƒPCP Practices Survey [53]

Measures PCPsā€™ screening and referral practices and their understanding of early ASD characteristics.

ā€ƒPCP Checklist [54]

Describes the screening procedures used, referrals made, and the presence of ASD concerns/risk factors at the childā€™s 18-month well-child visit.

ā€ƒImplementation Survey (Adapted from Dingfelder & Mandell) [55],a

Measures the barriers and facilitators to using the web-based M-CHAT-R/F, as well as its feasibility and acceptability.

Completed by EI Programs

ā€ƒEI Provider Practices Survey [56]

Measures providersā€™ screening and treatment practices and their understanding of early ASD characteristics.

ā€ƒEI Checklist [57]

Describes the assessments and interventions each child enrolled from EI has received.

ā€ƒImplementation Survey (Adapted from Dingfelder) [58],a

Measures the barriers and facilitators to using the STAT, caregiver interview, and RIT, as well as their feasibility and acceptability.

Completed by Parents

ā€ƒFamily Demographic Form

Measures family characteristics (e.g., parent education, number of children)

ā€ƒChild Health Services Survey [59]

Assesses the childā€™s development and their history of screening, referrals, diagnosis, and intervention services.

ā€ƒIntervention Services Survey [60]

Measures the types of directed intervention and parent-mediated intervention toddlers are receiving.

ā€ƒParenting Stress Index - Short Form [61]

Measures 3 different types of parenting-related stress.

ā€ƒParenting Efficacy Scale [62]

Measures parentsā€™ perceived efficacy in several domains of child care.

ā€ƒParent Interview for Autismā€“Clinical Version [63]

Measures toddlersā€™ ASD symptom severity in 4 social-communicative domains.

ā€ƒMeasure of Processes of Care (Adapted from Bjerre et al.) [64]

Measures 5 dimensions of healthcare professionalsā€™ behavior. Completed for their PCP practice and EI program (if applicable).

ā€ƒWHO Quality Of Life-BREF (WHO, 1997) [65]

Measures satisfaction in the domains of physical health, psychological health, social relationships, and environment.

  1. Note. a Measures to be collected only during the Post-SRT intervention phase