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Table 3 Information needs reported by studies on people with anxiety (k = 23 studies)

From: Information needs and sources of information among people with depression and anxiety: a scoping review

Theme

Information Needs

Number and Percentage of Studies

General facts about anxiety (k = 17; 73.9%)

Symptoms

9 (52.9%)

Diagnosis (diagnostic criteria; meaning of diagnosis)

7 (41.2%)

Aetiology (causes of anxiety; scientific details)

5 (29.4%)

General information on anxiety

3 (17.6%)

Prevalence of anxiety

3 (17.6%)

Prognosis (length/course of anxiety; recovery)

3 (17.6%)

Whether anxiety is normal

2 (11.8%)

Information on suicidal thoughts

2 (11.8%)

Risks of developing anxiety based on family history

1 (5.9%)

Treatment (k = 21; 91.3%)

Treatment options and comparison between options

12 (57.1%)

Side effects of treatment

11 (52.4%)

General information on medication

9 (42.9%)

Effectiveness/benefits of treatment and expected outcomes

7 (33.3%)

Length of treatment

4 (19.0%)

Psychosocial or nonpharmacological interventions

4 (19.0%)

Appropriate use of medication (e.g., dosage)

4 (19.0%)

Mechanisms or (non-)pharmacological actions of medications

3 (14.3%)

Explanation of specific procedures and approaches used

2 (9.5%)

Issues related to addiction, tolerance, and dependence of medication

2 (9.5%)

Adverse drug reactions

2 (9.5%)

What does the prescribed dose indicate about patients’ condition

1 (4.8%)

Placebo/nocebo effects

1 (4.8%)

Lived experience (k = 7; 30.4%)

Other people’s experience of anxiety in general

6 (85.7%)

Other people’s experience of taking medications for anxiety

1 (14.3%)

Other people’s experience of recovery from anxiety

1 (14.3%)

Healthcare services (k = 14; 60.9%)

Available local services (e.g., hospitals, clinics, day care)

11 (78.6%)

Healthcare professionals (e.g., psychologists, psychiatrists)

6 (42.9%)

How or where to get help

5 (35.7%)

Support groups & patient associations

5 (35.7%)

Role of psychologists

1 (7.1%)

Coping & self-management (k = 8; 34.8%)

Strategies to cope with anxiety and alleviate symptoms

7 (87.5%)

Improving independent living skills (coping with everyday life)

3 (37.5%)

Managing medication side effects

1 (12.5%)

What to do in case of no response to medication

1 (12.5%)

Strategies to improve self-esteem

1 (12.5%)

Coping with stigma/discrimination

1 (12.5%)

Financial & legal information (k = 3; 13.0%)

Financial assistance

2 (66.7%)

Cost of treatment

1 (33.3%)

Mental health law

1 (33.3%)

Other information needs (k = 4; 17.4%)

Information for relatives

2 (50.0%)

How to figure out severity of mental disorder

1 (25.0%)

Interpretation of information from patient information leaflets and the internet

1 (25.0%)