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Table 2 Thematic framework illustrating parent support challenges and support needs/preferences

From: Understanding the support needs of parents of children with obsessive-compulsive disorder: a qualitative descriptive study in the UK

Theme

Sub-theme

 

Support challenges

Support needs/preferences

Coping with the impact of OCD

Overwhelming nature of OCD

Headspace (respite)

Compassion & sensitivity

Sharing experiences

Getting help for my child

A battle to access OCD treatment

Being heard by professionals

Firming up the OCD pathway

Understanding parents’ role

Uncertainty & confusion about accommodation

Guidance on accommodation

Visibility of caring role

Treatment expectations

Making sense of OCD

Confusing nature of OCD

Parent-focused information

OCD and other conditions

Joined-up care

Misunderstandings about OCD

A united approach

Lack of shared understanding in the family

Lack of coordination & unity across & within services