Table 2 Overview research group organization

Recruitment sites ^a

Neurohabilitation, Oslo University Hospital

Neurohabilitation, Ahus Hospital

Nic Waals Institute, Lovisenberg Hospital

District Nordstrand, Oslo Municipality

District Vestre Aker, Oslo Municipality

Emma Hjort, Bærum Municipality

Frambu, Competence Centre for Rare Diagnoses

Project management group

University of Oslo:

-Principal Investigator B. Hassel (prof.);

Oslo University Hospital, Oslo, Norway;

-C. Tronstad (Dr. Philos)

KG. Jebsen Centre for Neurodevelopmental Disorders:

-T. Nærland (Ph.D.);

-E. Kildal (PhD-cand)

-O. Andreassen (prof.);

-D. Quintana (PhD);

-A. Szabo (PhD)

Scientific advisory board^b

Oslo Metropolitan University: C. Morland (PhD)

Oslo University Hospital: S. Hope (PhD)

Rigshospitalet Copenhagen: A. Sabers

Patient representatives^c

Bærum Municipality: Chief of care, H. Hesselberg

LUPE (national user organization for persons with ID): H. Kvame

Cerebral Palsy organization: E. Buschmann