Table 1 Quantitative and qualitative data collection: measures, time points and sources
Baseline | Post advance statement completion | Post event when advance statement use expected | Follow up | Monthly throughout Phase 3 | |
|---|---|---|---|---|---|
Demographic & clinical data | Service users | ||||
Staff role data | Staff involved in completion | Staff involved in completion and/or use | |||
Satisfaction with and perceived value of advance statements completion | Service users | Service users | Service users Carers/informal supporters involved in completion Staff involved in completion | ||
Satisfaction with and perceived value of statements use | Service users | Service users | Service users Staff involved in completion and/or event Carers/informal supporters involved in completion | ||
Reasons for completion and non-completion* | Service users | Service users | Service users | Service users Carers/Informal supporters involved in event / completion Staff involved in event / completion | |
Distribution of hard & electronic copies | Staff involved in completion Clinical notes | Staff involved in completion / event | |||
Accessing advance statement | Service users | Service users Staff involved in completion and/or event Carers/informal supporters involved in completion | |||
Advance statement choices honoured | Service users | Service users Staff involved in event | |||
Advance statements choices clearly not honoured | Service users | Service users Staff involved in event | |||
Reasons for advance statement choices not being honoured | Service users | Staff involved in event | |||
FIM, IAM & AIM | Service users | Service users Carers involved in completion / event Staff involved in completion / event | |||
Advance statement content | Electronic record review | Electronic record review | |||
Use of mental health and emergency services | Service user Electronic record review | ||||
Types of revisions made to advance statement | Electronic record review Service user Staff involved in completion | ||||
Staff feedback from team meetings | Staff involved in completion |