Table 1 ARFID-GEN Assessment Battery
From: ARFID Genes and Environment (ARFID-GEN): study protocol
Domain | Assessment | Version | Parent- or self-report | Age |
|---|---|---|---|---|
ARFID symptoms and diagnosis | ||||
ARFID symptoms | Nine Item ARFID Screen (NIAS) | NIAS [20] | Self | 14 + |
Parent | 7–17 | |||
ARFID diagnosis | Pica, ARFID, and Rumination Disorder Interview-ARFID-Questionnaire (PARDI-AR-Q) | PARDI-AR-Q [21] | Self | 14 + |
PARDI-AR-Q parent [21] | Parent | 7–17 | ||
Other eating disorder pathology | ||||
Lifetime eating disorder diagnoses | ED100K Version 3 (ED100Kv3) | ED100Kv3 [26] | Self | 15 + |
Current eating disorder symptoms (last 28 days) | Eating Disorder Examination-Questionnaire (EDE-Q) | EDE-Qv6 [23] | Self | 15 + |
Child Version of the Eight Item EDE-Q (ChEDE-Q8) [24] | Self | 7–14 | ||
Version 2.0 of the Parent Version of the EDE-Qv6 (PEDE-Qv2.0) [22] | Parent | 7–17 | ||
Depression, anxiety, and neurodevelopment | ||||
Current depressive symptoms | Patient Health Questionnaire (PHQ) | PHQ-9 [50] | Self | 18 + |
PHQ-Adolescents (PHQ-A)a [51] | Self | 12–17 | ||
Current depressive symptoms (last two weeks) | Short Mood and Feelings Questionnaire (MFQ) [52] | Self | 18 + | |
Self | 7–17 | |||
Parent | 7–11 | |||
Current anxiety symptoms | Generalized Anxiety Disorder-7 (GAD-7) | GAD-7 [54] | Self | 12 + |
Major depression and anxiety disorders | Revised Child Anxiety and Depression Scale (RCADS) | Self | 7–11 | |
Parent | 7–11 | |||
Obsessive–compulsive symptoms | Obsessive–Compulsive Inventory-Revised (OCI-R) | OCI-R [59] | Self | 12 + |
Intellectual/ developmental disability | Three intellectual/ developmental questions (developed for this study) | N/A | Parent | 7–17 |
Temperament | One Item Temperament Scale | Temperament [60] | Parent | 7–17 |
Detailed assessment of major depressive disorder and generalized anxiety disorder | Items from the mood and anxiety questionnaire for the Genetic Links to Anxiety and Depression Study (GLAD) [61] | GLAD mood & anxiety items (GLAD)c | Self | 15 + |
Impairment | ||||
Eating disorder-specific health-related quality of life | Eating Disorders-Quality of Life (EDQOL) | Self | 18 + | |
General health-related quality of life | Short Form Health Survey-12 (SF-12) | SF-12 [64] | Self | 15 + |
Health-related quality of life | Pediatric Quality of Life Inventory 4.0 (Peds-QL 4.0) | Peds-QL 4.0 for children [65] | Self | 7–12 |
Peds-QL 4.0 for adolescents [65] | Self | 13–17 | ||
Peds-QL 4.0 for parents of children [65] | Parent | 7–12 | ||
Peds-QL 4.0 for parents of adolescents [65] | Parent | 13–17 | ||
General health | General health questions (developed for this study) | Adult version | Self | 18 + |
Parent version | Parent | 7–17 | ||
Environmental exposures | ||||
Negative life events | Avon Longitudinal Study of Parents and Children (ALSPAC) life events checklists [66] | Major Life Changes (MLC)c [67] | Self | 12 + |
Upsetting Events (UE)c [67] | Parent | 7–11 | ||
Mother’s pregnancy history | Pregnancy History Questionnaire (PH) [68] | PH | Self | 18 + |
PH parent version | Parent | 7–17 | ||
Psychological health | Strengths and Difficulties Questionnaire (SDQ) [69] | SDQ adult single-sided version [70] | Self | 18 + |
SDQ child single-sided version [70] | Self | 12–17 | ||
SDQ parent single-sided version [70] | Parent | 7–11 | ||
Other | ||||
Experiences with ARFID | Free response question for other comments on experiences with ARFID (developed for this study) | Adult version | Self | 18 + |
Parent version | Parent | 7–17 | ||