Triplett P, Dyer H, Pascoe J. Partnership between parents/caregivers and pediatricians when children are hospitalized: parents’ perspective. Curr Probl Pediatr Adolesc Health Care. 2021;51:100999.
Shah HS, Leifheit K, Polk S, Sloand E, Cheng TL, DeCamp LR. Are parent activation and health literacy distinct concepts? A study in low income urban populations. J Health Dispar Res Pract. 2018;11:1–15.
Green AL, Lambert MC, Hurley KD. Measuring activation in parents of youth with emotional and behavioral disorders. J Behav Health Serv Res. 2019;46(2):306–18.
Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39(4 Pt 1):1005–26.
Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med. 2012;27(5):520–6.
Greene J, Hibbard JH, Sacks R, Overton V, Parrotta CD. When patient activation levels change, health outcomes and costs change, too. Health affairs (Project Hope). 2015;34(3):431–7.
Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health affairs (Project Hope). 2013;32(2):207–14.
Marshall R, Beach MC, Saha S, Mori T, Loveless MO, Hibbard JH, Cohn JA, Sharp VL, Korthuis PT. Patient activation and improved outcomes in HIV-infected patients. J Gen Intern Med. 2013;28(5):668–74.
Yao F, Zheng M, Wang X, Ji S, Li S, Xu G, Zheng Z. Patient activation level and its associated factors in adults with chronic pain: a cross-sectional survey. Medicine (Baltimore). 2021;100(19):e25929.
Doody O, Butler MP, Lyons R, Newman D. Families’ experiences of involvement in care planning in mental health services: an integrative literature review. J Psychiatr Ment Health Nurs. 2017;24(6):412–30.
Mundal I, Laake P, Mezzich J, Bjørkly SK, Lara-Cabrera ML. Assessment of the Quality of Life in Parents of Children With ADHD: Validation of the Multicultural Quality of Life Index in Norwegian Pediatric Mental Health Settings. Front Psychol. 2021;12:638006.
Pennarola BW, Rodday AM, Mayer DK, Ratichek SJ, Davies SM, Syrjala KL, Patel S, Bingen K, Kupst MJ, Schwartz L, et al. Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Med Care Res Rev. 2012;69(2):194–214.
Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res. 2005;40(6p1):1918–30.
DeCamp LR, Leifheit K, Shah H, Valenzuela-Araujo D, Sloand E, Polk S, Cheng TL. Cross-cultural validation of the parent-patient activation measure in low income Spanish- and English-speaking parents. Patient Educ Couns. 2016;99(12):2055–62.
Liberman DB, Pham PK. Parent activation in the pediatric emergency department: theory vs. reality. Patient Educ Couns. 2018;101(6):1116–22.
Yu Y, Ruble L, McGrew J, Murray D. Parent Activation Measure for Developmental Disabilities (PAM-DD) in caregivers of individuals with ASD. J Autism Dev Disord. 2022. Online ahead of print.
Bomba F, Markwart H, Mühlan H, Menrath I, Ernst G, Thyen U, Schmidt S. Adaptation and validation of the German Patient Activation Measure for adolescents with chronic conditions in transitional care: PAM(®) 13 for adolescents. Res Nurs Health. 2018;41(1):78–87.
Hellström A, KassayeTessma M, Flink M, Dahlgren A, Schildmeijer K, Ekstedt M. Validation of the patient activation measure in patients at discharge from hospitals and at distance from hospital care in Sweden. BMC Public Health. 2019;19(1):1701.
Lightfoot CJ, Wilkinson TJ, Memory KE, Palmer J, Smith AC. Reliability and validity of the patient activation measure in kidney disease: results of Rasch analysis. Clin J Am Soc Nephrol. 2021;16(6):880–8.
Moljord IE, Lara-Cabrera ML, Perestelo-Perez L, Rivero-Santana A, Eriksen L, Linaker OM. Psychometric properties of the Patient Activation Measure-13 among out-patients waiting for mental health treatment: a validation study in Norway. Patient Educ Couns. 2015;98(11):1410–7.
Moreno-Chico C, González-de Paz L, Monforte-Royo C, Arrighi E, Navarro-Rubio MD, GallartFernández-Puebla A. Adaptation to European Spanish and psychometric properties of the Patient Activation Measure 13 in patients with chronic diseases. Fam Pract. 2017;34(5):627–34.
Packer TL, Kephart G, Ghahari S, Audulv Å, Versnel J, Warner G. The Patient Activation Measure: a validation study in a neurological population. Qual Life Res. 2015;24(7):1587–96.
Stein GL, Kulish AL, Williams CS, Mejia YC, Prandoni JI, Thomas KC. Latina/o parent activation in children’s mental health treatment: The role of demographic and psychological factors. Journal of Latina/o Psychology. 2017;5(4):290.
Stensen K, Jozefiak T, Lydersen S: Psychometric properties of the caregiver-teacher report form in a sample of Norwegian preschool children. Nord J Psychiatry. 2022;76(8):1–7.
World Health Organization. International Statistical Classification of Diseases and related health problems: Alphabetical index. Geneva: World Health Organization; 2004;3.
APA. In: Association AP, editor. Diagnostic and statistical manual of mental disorders. 5th ed. Arlington: VA: American Psychiatric Publishing; 2013.
Nøvik TS, Haugan AJ, Lydersen S, Thomsen PH, Young S, Sund AM. Cognitive-behavioural group therapy for adolescents with ADHD: study protocol for a randomised controlled trial. BMJ Open. 2020;10(3):e032839.
Achenbach T. Achenbach system of empirically based assessment (ASEBA): development, findings, theory, and applications: Research Center of Children, Youth & Families: University of Vermont; 2009.
DuPaul GJ, Reid R, Anastopoulos AD, Lambert MC, Watkins MW, Power TJ. Parent and teacher ratings of attention-deficit/hyperactivity disorder symptoms: Factor structure and normative data. Psychol Assess. 2016;28(2):214–25.
Shaffer D, Gould MS, Brasic J, Ambrosini P, Fisher P, Bird H, Aluwahlia S. A children’s global assessment scale (CGAS). Arch Gen Psychiatry. 1983;40(11):1228–31.
Wechsler D. Wechsler Intelligence Scale for Children-Fourth edition (WISC-IV). San Antonio, TX: The Psychological Corporation; 2003.
Health I. Parent Patient Activation Measure. 2011.
StataCorp. Stata Statistical Software: Release 16. College Station, TX: StataCorp LLC.; 2019.
Williams B, Onsman A, Brown T: Exploratory factor analysis: A five-step guide for novices. Australasian J Paramed. 2010;8(3):1–13.
Schreiber JB. Core reporting practices in structural equation modeling. Res Social Adm Pharm. 2008;4(2):83–97.
Cronbach LJ. Report on a psychometric mission to Clinicia. Psychometrika. 1954.
Hayes AF, Coutts JJ. Use omega rather than Cronbach’s Alpha for estimating reliability. But…. Commun Methods Measures. 2020;14(1):1–24.
Mokkink LB, Terwee CB, Knol DL, Stratford PW, Alonso J, Patrick DL, Bouter LM, de Vet HC. The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Med Res Methodol. 2010;10:22.
Dunn TJ, Baguley T, Brunsden V. From alpha to omega: a practical solution to the pervasive problem of internal consistency estimation. Br J Psychol. 2014;105(3):399–412.
Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16(3):297–334.
Kaiser HF, Michael WB. Little jiffy factor scores and domain validities. Educ Psychol Measur. 1977;37(2):363–5.
Williams B, Onsman A, Brown T. Exploratory factor analysis: a five-step guide for novices. Australasian J Paramed. 2010;8(3):1–13.
Ruble L, Murray D, McGrew JH, Brevoort K, Wong VW. A preliminary study of activation, stress, and self-management of parents of children with autism spectrum disorder. J Child Fam Stud. 2018;27(3):825–34.
McNeish D. Thanks coefficient alpha, we’ll take it from here. Psychol Methods. 2018;23(3):412–33.
Goodboy AK, Martin MM. Omega over alpha for reliability estimation of unidimensional communication measures. Ann Int Commun Assoc. 2020;44(4):422–39.
Lara-Cabrera ML, Gjerden M, Grawe RW, Linaker OM, Steinsbekk A. Short-term effects of a peer co-led educational programme delivered before mental health treatment: a randomised controlled trial. Patient Educ Couns. 2016;99(7):1257–61.
Cappe E, Bolduc M, Rougé M-C, Saiag M-C, Delorme R. Quality of life, psychological characteristics, and adjustment in parents of children with Attention-Deficit/Hyperactivity Disorder. Qual Life Res. 2017;26(5):1283–94.
Sankey C, Derguy C, Clément C, Ilg J, Cappe É. Supporting parents of a child with autism spectrum disorder: the French awakening. J Autism Dev Disord. 2019;49(3):1142–53.
Lai WW, Oei TPS. Coping in parents and caregivers of children with Autism Spectrum Disorders (ASD): a Review. Rev J Autism Dev Dis. 2014;1(3):207–24.
Theule J, Wiener J, Tannock R, Jenkins JM. Parenting stress in families of children with ADHD: a meta-analysis. J Emot Behav Disord. 2010;21(1):3–17.
Belsky J. The determinants of parenting: a process model. Child Dev. 1984;55(1):83–96.
Park JL, Hudec KL, Johnston C. Parental ADHD symptoms and parenting behaviors: a meta-analytic review. Clin Psychol Rev. 2017;56:25–39.
Fiks AG, Mayne SL, Karavite DJ, Suh A, O’Hara R, Localio AR, Ross M, Grundmeier RW. Parent-reported outcomes of a shared decision-making portal in asthma: a practice-based RCT. Pediatrics. 2015;135(4):e965-973.
Latkin CA, Edwards C, Davey-Rothwell MA, Tobin KE. The relationship between social desirability bias and self-reports of health, substance use, and social network factors among urban substance users in Baltimore, Maryland. Addict Behav. 2017;73:133–6.